For Howard 10/27/1965 to 02/29/2016

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I thought I’d do a little tribute to my brother in law Howard who passed away early this morning.   He was 50 years old.  Howard had a heart that didn’t work as well as it could have, maybe that was because it was doing other work –  holding so much love.

Howard was born with down’s syndrome, a genetic condition that causes individuals to have physical and intellectual challenges as they develop and mature. Most of us humans have  DNA that is made up of  23 pairs of chromosomes for a total of 46.   People with Down’s syndrome have 47 chromosomes because one of the pairs,(pair #21) is a trisomy, or a set of three instead of two. One extra. That extra genetic material is the reason Howard’s heart didn’t work so well at pumping blood, but it may also be the reason that it was extra good at loving.

For the past 15 years or so we would visit him in Long Island NY where he lived with “the guys,”  who were his housemates. Often we’d call him and he was headed off to the movies with “the guys”, or a play, or a dance, even a hockey game.    If you asked him how the game was, he’d say “Great! Very Exciting!” with as much enthusiasm as any sports fan of the winning team.   But if you asked him who won, he’d say “I don’t know,” which was the same answer he gave if you asked who was playing.  It didn’t matter who played or what the score was because Howard was there for the joy.

It was impossible to stay in a bad mood when he was around too. You know the family parties where aunts and cousins show up with their signature dishes, or flowers, or wine?  Uncle Howard had a signature dish too, he always brought a smile and hug and a warm fuzzy feeling.   He was reliably kind, and funny, and even liked being part of the clean up crew.

We were lucky enough to have him as a houseguest twice last year. and when he came to visit us he often would pick up my husband’s acoustic guitar even though he had no idea how to play it.  That didn’t stop him from strumming and singing a love song. I’m sure that Howard thought he sounded like Elvis singing a ballad and the truth is, he did not.   But none of us would tell him that because we enjoyed every heartfelt attempt he made. And if by chance somebody said “You sound awful,” I know Howard would have said “Oh, can you help me?  Can you help me sound good?”  I never knew another person who took every critique he was given as an opportunity for improvement like he did.   He just wanted to make people happy.

Desert was his favorite, or maybe desert was tied for first place with cheeseburgers.  He also liked puppies and notebooks and new pens. He loved his mother and his brother and wished hard for good things to happen in the world.  Optimistic?  Indeed.   If you asked him how he was, he always said the same thing.   “Doing good, doing great!”  It didn’t matter if he was home watching television or in the hospital with only a small chance of recovery.  Howard was always “Doing good, Doing great!”

Trisomy 21, or Down’s Syndrome comes with a host of things like delayed development, up slanted eyes,  low set ears, and speech impairment, but I think they should add extra loving to that list, at least as one possible thing you might expect from Trisomy 21.   So Howard, if you’ve left a lesson for the rest of us still walking around it should be this – life is short, look for the joy, and listen to love songs whenever you get the chance.

RIP Howard.  XOXO

Family Meetings

 

Ah… the family meeting.  Have you ever tried to have one?  In our house we all gather around to discuss things like curfews, allowance, chores and bad behavior.  I know I could speak to them all separately about this stuff, but I’ve leaned that it’s much better to have a  witnesses because inevitably, somebody will fail at what’s expected and offer the excuse , “But mom, you never said that.”

But indeed, I did.

What annoys me the most about these family meetings is how everybody nods their heads and says exactly what I want to hear at the exact moment I want to hear it.    Do they know in advance that they’re not going to do one single thing we talked about?   Should I remain hopeful that when they look at me and nod that finally, they actually “get me?”

Let’s face it, they don’t.

Throughout the years I’ve called these family meetings and said things like this:   “I’m shutting of the internet at night;  if you want to borrow something from me you may, but only if you give me something valuable as a deposit,” and “please put things away after you’re done with them.”   You might recognize these results.


 

The internet

Me.  “No internet after 10pm because none of you are getting enough sleep.” 

Them: ” You’re right mom.  We understand.”

                           One night after I put my policy into place

Husband:  “I haven’t gotten to where I can shut down the internet by each device yet, so just leave it on.”


Borrowing

Them:  “Mom, where are the scissors?”

Me:   “I will let you have them for a dollar deposit.”

                          The next day.  

Me:  “Where are my scissors?”

Them:  “I thought I’d just keep them.  It’s only like, a buck, right?”


Cleaning Up

Them:   “Where’s the honey?”

Me:   “It’s in the shed in the back of the yard.”

Them:  “Why?  Because I didn’t put it away?”

Me:  “Yes.”

Them:  “That’s okay, I’ll just use sugar.”


I thought she couldn’t live without honey in her tea.   Seems she can.  The honey bear is still sitting it the shed in the back yard.  

I’ll get it in the spring. 

 

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Because I Said So

Theater Faces
Theater Faces

Parenting takes courage. We summon it from amazing places after our children are born.   Questions about bowel movements don’t embarrass us, interrogating babysitters becomes rote, facing off with teachers and other parents, making choices, suffering consequences, getting up and doing it over and over again.

Sometimes I’m motivated to do things because  my children are watching.  I want to lead by example because I think it’s the right thing to do.  And  because  I hated it when my mother said things to me like “Because I said so!” Of course when that happened, I immediately stopped doing, or started doing whatever it was I was supposed to, but really, is because I said so a reason?   Sometimes I wanted to say, “why don’t YOU do it?”  But that’s never a good thing to say to your mom.

So this leads me to the day I wanted my little girl to audition for a community theater show.   I wouldn’t do it, I have stage fright.   But I told her she should.   The disagreement followed and I won, but only “because I said so.”

As the years went by I remembered how I never tried out for my school plays, or auditioned for any of the solo parts in choir.  Was it fair for me to thrust them onto a stage when I never could find the courage to do that? I really had no idea what it was like to stand alone on a stage.  Why was I so scared?  More importantly, how could I get over it?

One day purely by chance I met a woman who was trying to put together an adult acting class, “a friendly atmosphere” with no auditions required. I thought okay, this may be the very thing I need. Surprisingly I didn’t hate it. But while I gained confidence, my classmates dropped out until I was the only one left in the class. But fate stepped in another door opened, but this time with real actors and a real goal – to complete an audition for a community theater production.  Egad.  I explained to this new group of experienced actors that I was doing this merely for self improvement and that I wasn’t sure about the whole audition thing.

Twelve weeks later I was literally a new me.  I was ready, monologue prepared, lights on, center stage – me. I found the courage to stand there alone, say my lines and deliver. I think I actually grew taller as the weight of that my burden departed.  I even got a tiny part in a tiny play.

Being strong for the kids is easy but being strong for myself took a little work. Even though there are no outward signs of my victory, I know I’m a better parent. I’m a better person.  Shaking off those school day inhibitions took a long time and I know it’s  cliché to say it but if I can do it, anybody can.   And frankly, I’d rather say that to my kids than say because I said so.

I Am Mom

I am your sunshine
Who’s your   sunshine?

Recently, in a somewhat spirited conversation with my daughter, I was told that giving her advice “Isn’t your job.”   Of course without missing a beat I explained, again somewhat spiritedly, that giving advice is indeed my job and I continued to list other things in my job description

I won’t repeat it for you, because you’d tune me out just like she did.  But, I would like to name the top five things that I (am moms all over the world ) do, which teenagers forget about and for which I know they are eternally grateful, even if they don’t show it.

I potty trained them.  Without me they would  probably figure it out on their own but I think I am owed a little gratitude for setting them up for bathroom success.  Not to mention all the diaper changes and ‘accident management’ that I’ve provided.

I find the phone, the purse, the keys, the money,  the shoes, the permission slips, concert tickets, and the coat, to name a few.

I braid hair, trim hair, find hair elastics,  dye hair,  put it  in a bun, curl it, straighten it, even try to french braid (even though I stink at it) because you asked me to,  and then I suffer your bad moods when I fail.

I taught you the alphabet, how to count,  how to ride your bike, even how to clean the bathroom, but I guess you forgot that last part.

I am  your biggest fan, bar none.  I  go to  recitals,  shows, sports matches, I watch your cartwheels, I love your poetry, hang your artwork, and tolerate your non-stop singing and dancing when I’d rather be reading a book.  I am the cheerleader who encourages you to try when you want to stop, and I am there to understand when you’ve had all you can stand of trying.

I am mom.

 

 

 

It’s Snow Wonder We’re Related

 

It’s become a tradition that my daughter Emily & I make snow people in the winter.  Her sisters take the hot cocoa and indoor heat route to handle snow storms which is also attractive to me,  but I really need to build a snowman first.  Usually Em & I make one per snowfall or two if the snow is really cooperative.  A few years we ago we started naming them like winter storms.   So far we’ve had Alice, Brenda, Carlos, Dug, Elsa (of course), Floyd, George, Howard, and Irene. But the last time it snowed Emily insisted we name our snow gal Ophelia, in honor of her pineapple hair.   I’m not certain I get the association but but what’s the point in arguing a snowman’s name, really.  We’ll pick up the alphabetical order soon, maybe.

What I’ve learned from all the psychology books and classes and sessions, is that we either love or hate the way our own childhood went.  As a result we sometimes we go in some insane direction with our own childhood issues to love or hate the same things. I guess I loved making snowmen.   This year, with Ophelia still standing and more snow expected tonight, I hope we can give her some company but you never know with the weather where we live, so my fingers are crossed.

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Another thing that Emily & I share every time it snows is cleaning off the cars.   This year we found a new way to clean off the tops.   As you can see, Emily really likes it.

People say that Emily & I look alike.   Whether you agree or not, we like a lot of the same things, especially when it comes to snow.

 

29 days and a lot going on…

 

days-of-the-months-poem

 

This year February has 29 days so it’s called a leap year. I set out to understand leap year via this internet but for me leap years are like technology …  I don’t really need to know how it works, I’ll just work with it.  Of course like any good Googler, I learned an awful lot about February, and pretty much skipped over the leap year bits but I found these 10 facts about February you might like to know.  

  1. A lunar cycle is 29.5 days making February the only month in which it is possible to have no full moon.  Most years February will have a full moon but in 2018 there will be none. This doesn’t mean weird things won’t happen in February 2018, it only means that we can’t blame the full moon.
  2. February 2nd is Groundhog Day, when Punxsutawney Phil will tell us if spring is right around the corner, or not.  Statistically, flipping a coin will provide the same percentage of accuracy as Phil, but that’s not nearly as cool.
  3. February frequently occurs in lists of the most commonly misspelled words in the English language.  Last year a press release from the White House consistently spelled it as Feburary.
  4. Black History Month is always the month of February and there are some really terrific movies to help educate us on this topic.  My personal favorite is Glory.  I still can’t get over the real face to face combat.  See Glory it if you can.
  5. February is also: National Pet Dental Health Month; National Canned Food Month;  Hot Breakfast Month, Potato Lovers Month. You’ll have to choose which National Celebrations work best for you since there are no days off from work or school for these types of things.
  6. President’s Day is always the third Monday of the month.  It was changed from the actual birthday of President Washington as  the result of the Uniform Holiday Monday Act from the 1968. This was signed under President Nixon.   He intended for it to be Washington’s Birthday but now we lump in Lincoln’s birthday too, and of course retail sales.
  7. Valentines Day is February 14th. There are many stories of the history of Valentines Day.  Some theories include the poet Chaucer as the person who equated Valentines day with love, but the biography that I read makes no such association.
  8. Non leap years are called common years.
  9. If you were born on February 29th you were most likely conceived on June 8th or 9th. 
  10.  Leap year babies (Feb 29th) have a special name … leaplings.